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Helpline: Advocating for your loved one’s care needs
Caring for someone with dementia means you’re constantly learning—how to navigate healthcare, manage family dynamics and balance work with caregiving. You quickly become an expert in so many areas, often without realising it. But how do you share that wisdom with others? And what happens to all that knowledge once your loved one passes? Sharing your experiences with other carers can be incredibly valuable, not just for them but for you as well. It helps you to connect with others and can give you a renewed sense of purpose. If you’d like personalised advice on how to connect with other carers, you can contact the National Dementia Helpline on 1800 100 500. You can call 24 hours a day, or request a callback, start a webchat or send an email with whatever is on your mind. You can also listen to this episode of Hold the Moment to hear more stories of how other carers are sharing their knowledge. +++ Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios. Follow Dementia Australia on Facebook and Instagram or find support resources on our website. This episode was hosted by Jim Rogers and Kristin, a National Dementia Helpline Advisor. It was produced by Luci McAfee. Executive producers are Gia Moylan and Kellie Riordan. The National Dementia Helpline is funded by the Australian Government. Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.
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5:33
From carer to mentor: The importance of sharing your knowledge
Caring for someone living with dementia requires you to learn so much so quickly. From navigating a complex healthcare system, to managing family dynamics, to balancing caring duties with paid work – you’ll have to become an expert in a lot of areas very fast. But what do you do with all that knowledge after the person you cared for passes away? Miriam’s mum lived with dementia and, in her community in the Northern Territory, the condition wasn’t well understood and rarely talked about. But Miriam’s first-hand experience as a carer, as well as a Family and Community Coordinator for Dementia Australia, made her the go-to person on the subject. Miriam shares her story and explains why she’s so passionate about passing wisdom on to her community and the next generation of carers. +++ Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald. For support, you can contact the National Dementia Helpline on 1800 100 500 (24 hours a day, seven days a week). The National Dementia Helpline is funded by the Australian Government. Follow Dementia Australia on Facebook and Instagram or find support resources on our website. This episode was produced by Gia Moylan and Liam Riordan, with sound design by Ryan Pemberton. The executive producers are Gia Moylan and Kellie Riordan. Production manager is Ann Chesterman. Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today.
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28:35
Helpline: Strategies to help carers with grief and loss
People often think of grief as sadness felt when a loved one passes away. But grief can surface at many stages of caring for someone living with dementia, often in ways that you don’t expect. There are ways to care for yourself, find comfort and reconnect with what brings you happiness. This episode offers simple, practical ways to process those emotions while still embracing joy, connection and the things that make you feel like you. If you’d like personalised support, you can contact the National Dementia Helpline on 1800 100 500. You can call 24 hours a day, or request a callback, start a webchat or send an email with whatever is on your mind. Dementia Australia offers counselling support for caregivers and family members, find out more here. You can also listen to this episode of Hold the Moment to hear more about how other carers are working through their grief. +++ Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios. Follow Dementia Australia on Facebook and Instagram or find support resources on our website. This episode was hosted by Jim Rogers and Kristin, a National Dementia Helpline Advisor. It was produced by Luci McAfee. Executive producers are Gia Moylan and Kellie Riordan. The National Dementia Helpline is funded by the Australian Government. Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.
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4:24
Hold on to joy: Managing grief as a carer
Jenny started grieving well before her husband passed away. After Noel was diagnosed with dementia, Jenny knew their life together would never be the same. But the grief she felt about that gave her strength and purpose too... Grief will be a major part of your journey if you’re caring for someone living with dementia. You might grieve the relationship you had before their diagnosis and you might be grieving after the person you cared for has passed away. It’s a natural part of the process and it’s painful, but there are strategies that can help you manage. Jenny shares what helped her through and Mara, a Dementia Australia counsellor, shares how she helps carers through tough times. +++ Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald. For support, you can contact the National Dementia Helpline on 1800 100 500 (24 hours a day, seven days a week). The National Dementia Helpline is funded by the Australian Government. Follow Dementia Australia on Facebook and Instagram or find support resources on our website. This episode was produced by Gia Moylan and Liam Riordan, with sound design by Ryan Pemberton. The executive producers are Gia Moylan and Kellie Riordan. Production manager is Ann Chesterman. Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today.
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31:25
Helpline: Your guide to accessing dementia support services
Navigating the healthcare system on behalf of someone living with dementia can be challenging, especially when the different systems you’re engaging with don’t speak to each other. This episode offers simple tips to streamline the process. If you’d like personalised support on how to approach appointments or figure out the health care systems, you can contact the National Dementia Helpline on 1800 100 500. You can call 24 hours a day or request a callback, start a webchat or send an email with whatever is on your mind. If you’re considering residential care for your loved one with dementia, you can register for Dementia Australia’s helpful webinar here. +++ Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios. Follow Dementia Australia on Facebook and Instagram or find support resources on our website. This episode was hosted by Jim Rogers and Kristin, a National Dementia Helpline Advisor. It was produced by Luci McAfee. Executive producers are Gia Moylan and Kellie Riordan. The National Dementia Helpline is funded by the Australian Government. Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.
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5:01